Cystic fibrosis entered our lives without warning over 21 years ago. 

It all started when my beautiful daughter, Daphnée, was showing signs of poor absorption and struggled to regain her birth weight. Luckily, our family doctor suggested that we test Daphnée for the newborn screening and that’s how we discovered after 3 weeks of life, that Daphnée had cystic fibrosis (CF). She was diagnosed with a rare type of CF. My husband and I were shocked. I wanted to do anything I could to make sure that my daughter would be able to live life as normally as possible without worrying about her future.  

So, I’ve become deeply involved in the cystic fibrosis community here in Charlevoix, Quebec. I’ve been a part of many different CF committees and have participated in several fundraising events, all in an effort to raise critical funds for CF research. Research that will lead to more innovative and life-changing treatments and therapies like Trikafta.  

I’ve seen what this life-changing drug has done for others, the optimism and reassurance that it has given to many Canadians in the CF community who could benefit from it. Unfortunately, my daughter doesn’t qualify for Trikafta, given her genetic makeup. However, we strongly believe that our time will come for a ‘miracle’ drug too, and that’s because we have one thing that has kept us going all these years:  Hope.